Thursday 21 April 2016

A Good Day


Wild mushroom arancini  ( risotto balls) - and fried quail's egg at the excellent Salutation Inn  in Topsham - treating a friend to a late birthday lunch.


Followed by this Chocolate Box -  a divine confection.

It was all delicious and civilised and normal - with the person opposite me feeding themselves so I could just enjoy my own food.

This morning we have an appointment at Exeter Mobility centre where they make/order in prosthetics and orthotics and wheelchairs....where they know what it's like to not have or be able to use a limb. The young curly haired therapist with a strong Scottish accent ( Robin doesn't understand him) measures and lifts and examines Robin's arms. He shows us pictures in  a catalogue of strap supports to go round the shoulder and upper arm. The aim is to make sure the ball and socket joint is supported. The muscle wastage and weight of Robin's arm could cause it to tear/slip. 

Curly haired man says he'll order in different options for Robin to try. I'm impressed. This is all on the NHS. When I get back from picking up Robin from the Mede there is a message from the Community nurse saying she has spoken to the OT and ordered a single profile bed - which is like a hospital bed with an electric riser mechanism  - for Robin to have in the spare room so he doesn't have to go up any stairs.And when would we like it delivered.
I need to talk to her tomorrow as I'm not sure he's going to go for it.

No crying today. Just those few respite hours make me feel normal, stronger, resilient . All the dressing and undressing and tieing and untieing the shoelaces feels manageable. And I still get to  shower him and make supper and feed him in time to watch Masterchef. 

So that counts as a good day.


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